04.09.2013 | World Vitligo Day 2013 report
World Vitiligo Day report
World Vitiligo Day 2013 was made extra special this year by the participation of support groups and organizations from all over the world, but it was made extra special by the participation of individuals who, in many different countries, really went all out do do their bit to help spread awareness and raise the profile of the campaign.
T- shirt challenge
Obviously, as a non profit advocacy organization, we had very little funding to work with and couldn't make t-shirts, but it didn't matter as the WVD t-shirt challenge got a fantastic response from literally hundreds of people all over the world, sporting their own WVD t-shirts to help spread the message. Thank you to everyone that printed, designed, made their t-shirts, you are all awesome.
Last year World Vitiligo Day was focused on Rome and had a great response and this year in Detroit the Henry Ford Hospital and it's Vitiligo treatment centre team with Dr. Henry Lim, Dr. Iltefat Hamvasi and Dr. Richard Huggins, the Southeast Michigan Vitiligo Support group and the Vitiligo Research foundation really managed to put together a wonderful event that really did make it a special
It was kicked off by TV presenter Lee Thomas on Fox two with a World Vitiligo Day special where he interview Dr. Marsha Harris and the VRF CEO Yan Valle
Later that day a round table press event and discussion was held followed by a World Vitiligo Day.
The Detroit event was made even more special by the present of New York based French American artist Stephanie Corne, whose “facemotions” documented the inner emotions of vitiligans in Detroit and New York using mural, body paint and photography. The results are now ready to view here at www..stephaniecorne.com.
In recognition of the efforts of those in Detroit to raise vitiligo awareness, the mayor of Detroit and the governor of Michigan were both moved to give official proclamations declaring that Detroit and the state of Michigan officially recognize World Vitiligo Day.
Around the World
Support groups from all over the world held World Vitiligo Day support meetings and events including events in Puerto Rico, USA, South Africa, The UK, France and Germany.
In Boston, following World Vitiligo Day the Boston City Council delivered a resolution in support of the VITFriends' efforts in increasing awareness and offering education about vitiligo. http://www.youtube.com/watch?v=lbsmUfx6S0A
A week before the big day the T-shirt challenge was kicked off in Africa where VITSAF, had shirts printed and organised a walk for awareness.
In Kenya, VISOKE held a round table event and celebration for it's members discussing ways to help raise awareness.
In Kazakstan a WVD event was held that included free skin checkups for patients.
In Rome, a similar event was held, with the help of professor Torello Lotti.
In Hungary a small number of people took to the streets and also got online to make people aware of the World Vitiligo Day campaign, and for the first time Hungarians got into raising awareness.
There alsop awareness events on Croatia, Macedonia, and Georgia.
As a result of the World Vitiligo Campaign this year new support groups are being founded in the United States, and further afield too, in Africa. We will be doing our best to help with information and connecting people to get advice and support.
Facebook and the WVD petition
Over the period leading up to World Vitiligo Day and the day itself, more than 1000 new people joined our Facebook community making it the single biggest active vitiligo community in the World, and the activity online was unprecedented. The number of people showing support and really getting into the spirit of community was fantastic.
The World Vitiligo Day petition to the United Nations is a core element in the campaign to really make a difference in terms of worldwide awareness and support. The world vitiligo day petition was almost one year old two weeks before the 2013 event, and it was fairly static at around 16,000 signatures, but on June 23 it began to really take off in in the space of 3 days 100,00 people signed the petition and it's still going. To date we are up to 166,000 and counting, and this is largely thanks to the huge mobilization of support online. A huge thank you to the online community.
Onwards into 2014
With World vitiligo Day 2013 behind us we are now looking ahead to 2014 and the next World Vitiligo Day.
Through out this year there will be events focused on awareness and also focused on research and finding new treatments happening all over the world. We will be keeping track of these as they happen and keeping everyone up to date.
World Vitiligo Day 2014 will be coming from Sao Paolo in Brazil, so stay tuned and see you there.
World Vitiligo Day team
March 2017 (1):
January 2017 (1):
December 2016 (1):
July 2016 (2):
April 2016 (1):
March 2016 (1):
January 2016 (2):
- Theme for 2016: "How I Feel"
- World Vitiligo Day 2016 rally at the Capitol in Washington, DC on June 25th.
July 2015 (5):
- Sydney Vitiligo Support Meeting
- World Vitiligo Day 2015: over 500,000 petitions!
- John Harris's latest blog from the UMASS School of Medicine
- The power of millions united in celebration.
- World Vitiligo Day 2016 headquarters will move to Prague.
June 2015 (8):
- World Vitiligo Day 2015: beyond expectations!
- World Vitiligo Day youtube channel
- World Vitiligo Day 2015 in Canada
- World Vitiligo Day Petition update
- Winnie Harlow on dealing with vitiligo discrimination
- World Vitiligo Day fast approaching.
- Vitiligo Mission: An Appeal from IADVL
- Vitiligo group leaders meet in Vancouver, Canada
May 2015 (4):
- Vitiligo Advanced Technology Summit
- Marathon for World Vitiligo Day
- World Vitiligo Day calender
- World Vitiligo Day 2015: a quick update.
October 2014 (1):
September 2014 (1):
August 2014 (4):
- Chantelle: America's Next Top Model, cycle 21, premiers on Aug 18
- Taking flight with Michaela DePrince
- More photos from World Vitiligo Day 2014
- World Vitiligo Day 2014 in Croatia
July 2014 (3):
- World Vitiligo Day recognized by the Governor of Massachusetts
- World Vitiligo Day 2014 video of events in Chandigarh
- World Vitiligo Day exceeds all expectations
June 2014 (6):
- World Vitiligo Day 2014 kicks off in Chandigarh
- First Annual Vitiligo Aweareness walk in New Jersey
- Picture Your Vitiligo
- World vitiligo day you tube channel now running
- The World vitiligo Day video - Black or White
- Youtube world vitiligo day tubes
May 2014 (3):
- Vitiglio prevalence discussed on BBC
- World Vitiligo Day T-shirts update
- World Vitiligo Day 2014 in India
April 2014 (5):
- In memory of Prof. Antonio Salafia
- New Support groups
- Awareness growing in the WWW vitiligo community
March 2014 (2):
February 2014 (1):
December 2013 (2):
September 2013 (3):
June 2013 (11):
- Offical Mayoral proclamation for World Vitiligo Day in Detroit
- World Vitiligo Day goes live on Fox TV 27.06.2013
- World Vitiligo Day in Kenya with VISOKE
- Happy world vitiligo day
- World Vitiligo Day in Puerto Rico
- World Vitiligo Day 2013 events in Kazakhstan
- June is officially a Vitiligo Awareness month in Georgia
- Vitiligo Walk-a-Thon in Texas
- T-Shirt Challenge
- World Vitiligo Day Facemotions
- Vitiligo walk-a-thon in Nigeria launched campaign in West Africa
May 2013 (2):
February 2013 (2):
November 2012 (1):
October 2012 (2):
Why Is It Important
There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.
Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.
So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.
We have collected 502180 signatures of the target 500000 (100.44%). Now let’s get 1 million signatures!