01.08.2014 | World Vitiligo Day 2014 in Croatia

The University of Applied Health Sciences in Zagreb hosted the main Croatian event for the World Vitiligo Day celebration, on June 23rd 2014 in Croatia.
The president of the Croatian Vitiligo Association and VRF Scientific Board Member, Professor Andrija Stanimirovic, MD, PhD introduced the audience to the activities of the Association, and recent activites in field of vitiligo in Croatia including preparation of a Croatian proposal for vitiligo guidelines. Professor Mirna Šitum, MD, PhD, Head of the Department of Dermatovenereology „Sestre milosrdnice“ University Hospital Centre, Principal of the City Office for Health of Zagreb and VRF Scientific Board Member, and Professor Branka Marinović, MD, PhD, Head of the Department of Dermatovenereology University Hospital Centre Zagreb and School of Medicine cordially supported the event and expressed their willingness to take part in all activities of the Croatian Vitiligo Association and the VRF.
Dr Maja Kovacevic, MD, secretary of the Association, gave a lecture about the collaboration between the Croatian Vitiligo Association and the VRF, the Biobank project, June 25th and shared a video message from Mr. Lee Thomas.
Board member, Helena Rodek, described her battle and life with vitiligo fro a patient's perspective.
The main theme of this year's event was to give practical advice to patients with vitiligo. With this in mind, the Association organized interesting and informative lectures, including - Psychiatrist methods for dealing with vitiligo by Dr Milan Košuta, and Nutritionist advice for healthy living with vitiligo by Mirja Jošić. Patients received some practical advice regarding sun protection and applying camouflage, and also samples of dermatocosmetic products.

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Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

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We have collected 502815 signatures of the target 500000 (100.56%). Now let’s get 1 million signatures!

VR FOUNDATION

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.

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