World Vitiligo Day 2016 was an upbeat and festive event that drew huge crowds around the world numbering thousands of participants and many more spectators.
This year two capital cities – Prague and Washington D.C. – were at the forefront of WVD 2016:
- Beautiful Prague, capital of the Czech Republic and a hotbed of dermatology innovation, was this year’s headquarters. There, campaign was managed under the presidency of Professor Jana Hercogova, MD, Chairwoman Dermatology Department of Bulowka Hospital and a past-President of the European Academy of Dermatovenereology. Prof. Hercogova and her team are continously spreading the word through mass and social media, national dermatology associations, support groups and participating universities and clinics.
- In Washington, over three hundred people – including patients, family members, elected officials, charity leaders and celebrities - gathered at the steps of the Capitol on June 25th to show the unity and purpose of the vitiligo community to the world. This was a unique opportunity to bring WVD into the political limelight and to re-introduce the long-forgotten National Vitiligo Control Act. For more details, read a brief report or check out Facebook page.
This is, of course, were just a few of the things that marked World Vitiligo Day 2016. There were events taking place in almost every country in the world, including processions, street plays and public petition signing. What’s more, free skin check-ups for vitiligo were running through participating clinics in Africa, Brazil, Georgia, China, Croatia, Czech Republic, Honduras, Italy, Kazakhstan, Russia, the UK and elsewhere.
Just make sure you mark June 25th next year - whether it’s in person or with a donation – World Vitiligo Day 2017 needs you!
Photo: Rally members in front of the Capitol in Washington DC.
Why Is It Important
There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.
Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.
So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.
We have collected 502173 signatures of the target 500000 (100.43%). Now let’s get 1 million signatures!