2018

Campaign

This year’s theme is to communicate hope for the future by highlighting our youngest who have been afflicted with vitiligo, as well as recent research that is bringing a wealth of new treatments just on the horizon. 

Our goal is to sound the alarm that: vitiligo is a skin disease worthy of attention, funding for research into the cause and cure of vitiligo is sorely needed, adequate coverage of proven treatments for vitiligo is a right for patients, federal and local support for patient advocacy is needed.

Join us to end the bullying, social isolation, and suffering of vitiligo patients. 

2018

The 7th celebration of World Vitiligo Day will be will be held at UMass Medical School in Worcester, MA on June 22nd-24th, 2018, and hosted by Dr. John Harris, the Director of the Vitiligo Clinic and Research Center at UMass Medical School, and Valarie Molyneaux, the President and Founder of the VITFriends support group based in Boston, MA. The title for the event is “Children, Research, and Hope for the Future”, and will feature a session focused on children with vitiligo together with another session with vitiligo experts talking about their own research to improve the lives of patients with vitiligo. There will be plenty of time for all to socialize and get to know each other. Details and registration

Just make sure you mark June 25th next year - whether it’s in person or with a donation – World Vitiligo Day 2018 needs you! 

Photo: Rally members in front of the Capitol in Washington DC.

 

Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 502815 signatures of the target 500000 (100.56%). Now let’s get 1 million signatures!

VR FOUNDATION

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.

Partners and Sponsors