Ideas and Activities
There are many things we can all to on June the 25th. Firstly, let's all start by referring people to the www.25June.org website to sign the petition and take part in the online survey.
Generate as much interest as you can with podcasts, radio or television, stressing the importance of World Vitiligo Day as a focus for creating awareness and enlightenment globally about what vitiligo is, what causes the white patches on the skin, and how it affects our daily lives. The WVD facebook page is a resource and center for usall tocome together andcreate a mutual support network, so get involved. By getting proactive and taking action we can strengthen confidence and quality-of-life for ourselves and others affected by vitiligo, and by encouraging understanding of the disease, we can emphasize the positives and make those around us understand that we are no different tothem. Since local community attitudes can be strongly embedded, education about vitiligo is paramount, both to alleviate anxiety and to expedite treatment development.
Why Is It Important
There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.
Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.
So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.
Take part in survey
We have collected 15455 signatures of 500 000 (3.09%)