Steering Committee
Local and national vitiligo patient associations and medical societies are all active supporters of World Vitiligo Day, and their numbers are growing every year. Anyone who wants to help raise awareness for vitiligo can get involved. The WVD Steering Committee oversees the direction of the World Vitiligo Day awareness campaign, and coordinates the global media campaign and related activities. The Steering Committee was started by the VR Foundation and now is made up of vitiligo patients and patient association representatives from a number of different countries. If zou would like to take part and represent your support group, please contact us, and help us spread the message.
The Resolution of the General Assembly of Vitiligo Community.
Why Is It Important
There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.
Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.
So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.
Take part in survey
Quality Of Life Study (10 questions)
Signatures count
We have collected 15426 signatures of 500 000 (3.09%)
