Hear us as we speak with one voice about human rights, healthcare and education. We, the undersigned, are just the few of estimated over 100 million people living, working, taking care of children across the world with this neglected disease, vitiligo.
We contribute to every single industry and culture in the world. We are the rich and the poor. We are the face of the entire all neglected disease community. You find us in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.
Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. But few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, we often receive no support whatsoever from our national healthcare systems.
Thus, I support the initiative 25June and respectfully require the United Nations to
1. Urgently pursue multilateral efforts in vitiligo healthcare and education, and to
2. Designate June 25 as the World Vitiligo Day.
Mr. Secretary-General, please hear our voice. We know you can encourage Member States to respect our rights. Please pursue policies supportive of neglected disease collaboration, vitiligo in particular. This is central to the human rights and personal dignity of millions of women, men and children on this Earth.
Yours in health and freedom,
Why Is It Important
There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.
Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.
So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.
We have collected 486159 signatures of the target 500000
- 486159) Dina Helmy, Cairo, Egypt, student, 12/19/2014 01:05
- 486158) Edvina Causevic , Brcko , Bosnia and Herzegovina, , 12/17/2014 23:05
- 486157) Kaddour Demmouche, Strasbourg, France, Dessinateur, 12/17/2014 19:03
- 486156) Sylvie Roy, Cacouna, Canada, Mise en Production, 12/17/2014 01:23
- 486155) Patsy Dailey, Northampton, USA, Medical Assistant, 12/16/2014 19:11
- 486154) Ginette Levesque, Sept-Iles, Canada, Retraitee, 12/16/2014 16:57
- 486153) Nancy Belzile, Saint-Arsène, Canada, Professeure, 12/16/2014 16:46
- 486152) Sylvie brodeur, St-Antoine-de-Tilly, Canada, directeur artistique, 12/16/2014 15:39
- 486151) Nnenna Kalu Makanjuola, Atlanta, USA, , 12/16/2014 00:52
- 486150) Verónic Lucía, San Felipe, Venezuela, Estuadiante, 12/16/2014 00:14
- 486149) Anthony Lacilla, Earleville, United States, , 12/15/2014 06:16
- 486148) Privacy Protection, 12/14/2014 17:43
- 486147) Madison S, Modesto, USA, , 12/14/2014 01:11
- 486146) Muhammed Razmi, Kerala, India, Doctor, 12/13/2014 11:00
- 486145) hyunhwa song, busan, south korea, electric power, 12/13/2014 06:23
- 486144) Privacy Protection, 12/11/2014 02:39
- 486143) Leslie ArauZ, New York, Us, Student, 12/10/2014 08:56
- 486142) Privacy Protection, 12/10/2014 07:29
- 486141) Lee Anghelika, Taraz, Kazakhstan, , 12/09/2014 10:31
- 486140) Michelle Navarro, Bernalillo, United States, , 12/08/2014 22:14
- 486139) Jessica Medina, Lago Agrio, Ecuador, Secretaria, 12/08/2014 19:08
- 486138) andy abongo, nairobi, kenya, , 12/08/2014 18:00
- 486137) Sophia Wairimu, Nairobi, Kenya, IT, 12/08/2014 16:31
- 486136) Catherine Nzembi, Nairobi, Kenya, Teacher, 12/08/2014 16:27
- 486135) Joyce Wambui, Nairobi, Kenya, Student, 12/08/2014 16:24
- 486134) Everlyn Kavinya, Nairobi, Kenya, Student, 12/08/2014 16:22
- 486133) Mary Munyaga, Nairobi, Kenya, , 12/08/2014 16:20
- 486132) Reuben Ida, Nairobi, Kenya, Student, 12/08/2014 16:18
- 486131) Mildred Bitange, Nairobi, Kenya, student, 12/08/2014 16:16
- 486130) Dorris Makungu, Nairobi, kenya, Student, 12/08/2014 16:14
- 486129) Rebecca Mbithe, Nairobi, Kenya, Nurse, 12/08/2014 16:12
- 486128) Eunice Ngondu, Nairobi, Kenya, IT, 12/08/2014 16:09
- 486127) Lloyd W. Lunde, Sioux Falls, United States, Retired Teacher, 12/08/2014 15:39
- 486126) Edward McNally, Burlington, USA, Engineer, 12/07/2014 21:39
- 486125) Privacy Protection, 12/07/2014 05:18
- 486124) timilehin joseph, akure, nigeria, student, 12/06/2014 20:58
- 486123) CarolJean Thomas, YOUNGSTOWN, UNITED STATES, SMALL BUSINESS OWNER, 12/05/2014 23:50
- 486122) Tony Punjabi, New Delhi, India, , 12/05/2014 14:23
- 486121) Alfred Odiwuor, Nairobi, Kenya, Teacher, 12/05/2014 13:27
- 486120) Shanna Dorsey , Rogers , United States , Employee, 12/05/2014 01:37
- 486119) Sheyenne Dorsey, Rogers , United States , Student , 12/05/2014 01:34
- 486118) Lauren Davis, Philadelphia, United States, Human Resources Generalist, 12/04/2014 20:53
- 486117) Musiupe Musili, Nairobi, Kenya, Student, 12/04/2014 17:06
- 486116) Ruth Daniel, Nairobi, Kenya, Student, 12/04/2014 17:04
- 486115) Washingtone M'Kodende, Nairobi, Kenya, Teacher, 12/04/2014 17:01
- 486114) Onyaango Otieno, Nairobi, Kenya, Nurse, 12/04/2014 16:59
- 486113) Elizabeth Musyoka, Nairobi, Kenya, Student, 12/04/2014 16:56
- 486112) Naomi Kalondu, Nairobi, Kenya, , 12/04/2014 16:54
- 486111) Faith Malonza, Nairobi, Kenya, Teacher, 12/04/2014 16:50
- 486110) JAFFERSON OBWAMU, nairobi, kenya, , 12/04/2014 16:46