請願書

尊敬的秘書長先生:

感謝您傾聽我們在人權、衛生和教育領域的呼聲。我們患有一種被世人忽視的疾病——白癜風。署名的僅僅是這數儀人群中極少的一部份。我們遍佈世界各地,生活、工作、養家糊口。

我們為各個行業和文化發展努力。我們中即有富人也有窮人。我們代表了被整個社會忽視的這個疾病群體。我們的身影出現在學校、醫院、影視作品、體育場館和教堂中,也有很多人自我隔離默默的充當社會的志願者。

自歷史上記載有白癜風起,它已經毀壞了數以百萬人的生活,而絕大多數都在發展中國家。現在依然沒有看到治愈的曙光。很少有疾病引起白癜風這樣大的恐懼,尤其是在深膚色人群中表現更為明顯。另由於白癜風沒有傳染性也無生命危險,所以我們幾乎不曾得到國家衛生系統的支持。

因此,我恭敬地請求聯合國:

1、儘快對白癜風的衛生教育給予多層次的扶持,

2、將每年的 6月25日定為世界白癜風日。

秘書長先生,請聽我們的呼聲。我們知道,您可以鼓勵會員國更加尊重我們的權利。請給予白癜風這個被忽視的疾病更多的政策支持。這是對數以百萬婦女,男性和兒童人權和個人尊嚴的尊重。

爲了您的健康和自由。

[簽名]

Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 486081 signatures of the target 500000

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Petition Form № 486082








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petition signatures

  • 486081) Charel Fisher, Bonney Lake, United States, Disabled due to Fibromyalgia (also autoimmune disorder), 11/22/2014 23:16
  • 486080) Josiah Otege, DAR ES SALAAM, TANZANIA, Professional networker and Lifestyle Coach, 11/22/2014 18:33
  • 486079) Privacy Protection, 11/22/2014 11:21
  • 486078) Amy Nance, Allen, USA , Roofing sales, 11/22/2014 05:06
  • 486077) Privacy Protection, 11/21/2014 15:16
  • 486076) Thibault Brunel, Paris, France, Ingénieur du son, 11/20/2014 08:39
  • 486075) Privacy Protection, 11/19/2014 09:11
  • 486074) Gheorghe Varga, Medias, Romania, Manager, 11/18/2014 17:25
  • 486073) Naty Le Gall, Guérande, France, , 11/18/2014 16:08
  • 486072) ummu wahidatul, Semarang, Indonesia, Civil Servant, 11/17/2014 19:47
  • 486071) Rob Lawrence, Atlanta, United States, Student, 11/17/2014 16:17
  • 486070) Daniela Scarino, Rome, Italy, Teacher, 11/17/2014 11:56
  • 486069) Elya G, Moscow, Russia, editor, 11/17/2014 11:08
  • 486068) Максим Мельников, Москва, Россия, Шеф-Редактор, 11/17/2014 11:04
  • 486067) Mazhar Hussain, Sialkot, Pakistan, Businessman, 11/16/2014 17:28
  • 486066) ольга астафурова, волгоград, россия, студент, 11/16/2014 12:16
  • 486065) Борис Хлебников, Москва, Россия, Продюсер, 11/16/2014 11:02
  • 486064) Евгений Хлебников, Волгоград, Россия, , 11/16/2014 10:47
  • 486063) Ольга Хлебникова, Волгоград, Россия, Актриса(сейчас домохозяйка), 11/16/2014 10:43
  • 486062) Екатерина Диденко, Москва, Россия, Провизор, 11/15/2014 21:23
  • 486061) Marizete lSouza Lima, sorocaba, Brasil, PRESTADORA DE SERVIÇOS, 11/15/2014 17:52
  • 486060) Shizuka Tsukiko, Nagoya , Japan, , 11/15/2014 09:39
  • 486059) Junaid Ali, Manchester, United Kingdom, , 11/15/2014 09:36
  • 486058) Stephanie Bakalik, Calgary, Canada, Student, 11/15/2014 01:23
  • 486057) Perri dinnerman, atlanta, United States, Student, 11/14/2014 14:33
  • 486056) DongLyul Cha, Suwon, South Korea, worker, 11/14/2014 07:47
  • 486055) Stephen Marinaccio, Schooleys Mountain, United States, Producer, Songwriter, Musician, 11/13/2014 19:36
  • 486054) Magaly Rafael Alves, Itiúba, Brasil, Assistente Social, 11/13/2014 00:53
  • 486053) Jaiye Johnson, Lagos, Nigeria, Buisness Dev. Exec, 11/12/2014 20:51
  • 486052) Chirag Chitroda, Mumbai, India, Engineer, 11/11/2014 16:39
  • 486051) Refentse Mokale, Sasolburg, South Africa, Engineer, 11/11/2014 10:49
  • 486050) virender singh, Mumbai, India, Film Industry, 11/11/2014 07:19
  • 486049) Vivek Agrawal, Hyderabad, India, Software Engineer, 11/11/2014 05:59
  • 486048) Privacy Protection, 11/10/2014 00:39
  • 486047) leanne Chapman, Hull, England, customer services, 11/09/2014 20:50
  • 486046) Privacy Protection, 11/09/2014 09:51
  • 486045) Jole Morton, Los Angeles, United States, Full time student, 11/06/2014 08:46
  • 486044) JANG sunok, seoul, korea, teacher, 11/06/2014 06:56
  • 486043) Privacy Protection, 11/06/2014 06:39
  • 486042) Jessica Abarca, Calhoun, USA, Student, 11/05/2014 20:18
  • 486041) Jennifer Compan, Calhoun, USA, Student, 11/05/2014 20:17
  • 486040) susan Bulatow, NorthPort, United States, retired, 11/05/2014 17:56
  • 486039) susan Bulatow, NorthPort, United States, retired, 11/05/2014 17:55
  • 486038) Privacy Protection, 11/05/2014 14:57
  • 486037) Clementine Butler , Lauderdale , USA , Techer , 11/05/2014 11:29
  • 486036) Candice Butlet, Marion , USA , , 11/05/2014 11:27
  • 486035) Mariana McAnuff, mebane, usa, cna/patient service associate, 11/04/2014 18:41
  • 486034) Marco Martinez, San Lorenzo, Paraguay, Ing. Quimico, 11/04/2014 18:13
  • 486033) prof prem raj pushpakaran, calicut, india, professor, 11/03/2014 10:24
  • 486032) Phélicia GUYOMARD, Plagad, France, Studient, 10/30/2014 20:27

VR FOUNDATION: SPONSOR OF THE DAY

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.