請願書

尊敬的秘書長先生:

感謝您傾聽我們在人權、衛生和教育領域的呼聲。我們患有一種被世人忽視的疾病——白癜風。署名的僅僅是這數儀人群中極少的一部份。我們遍佈世界各地,生活、工作、養家糊口。

我們為各個行業和文化發展努力。我們中即有富人也有窮人。我們代表了被整個社會忽視的這個疾病群體。我們的身影出現在學校、醫院、影視作品、體育場館和教堂中,也有很多人自我隔離默默的充當社會的志願者。

自歷史上記載有白癜風起,它已經毀壞了數以百萬人的生活,而絕大多數都在發展中國家。現在依然沒有看到治愈的曙光。很少有疾病引起白癜風這樣大的恐懼,尤其是在深膚色人群中表現更為明顯。另由於白癜風沒有傳染性也無生命危險,所以我們幾乎不曾得到國家衛生系統的支持。

因此,我恭敬地請求聯合國:

1、儘快對白癜風的衛生教育給予多層次的扶持,

2、將每年的 6月25日定為世界白癜風日。

秘書長先生,請聽我們的呼聲。我們知道,您可以鼓勵會員國更加尊重我們的權利。請給予白癜風這個被忽視的疾病更多的政策支持。這是對數以百萬婦女,男性和兒童人權和個人尊嚴的尊重。

爲了您的健康和自由。

[簽名]

Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 482052 signatures of the target 500000

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Petition Form № 482053








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petition signatures

  • 482052) Marta Czerwinska, Edinburgh, Scotland, Student, 04/17/2014 15:45
  • 482051) Inge Dove, Pforzheim, Germany, , 04/17/2014 15:27
  • 482050) Andre Kruger, Tsitsikamma, South Africa, Self employed, 04/17/2014 11:45
  • 482049) Dajana Golić, Belišće, Croatia, , 04/17/2014 08:59
  • 482048) Penelope Bera, Rahway, United States, Chef, 04/17/2014 06:36
  • 482047) Olivia Judah, Rahway, USA, student, 04/17/2014 05:53
  • 482046) Privacy Protection, 04/17/2014 03:43
  • 482045) Christian Gould, London, England, Marketer, 04/17/2014 03:05
  • 482044) Asya Bridger, Laurinburg, USA, Sales Associate, 04/17/2014 02:52
  • 482043) Sheldon Achaab, mississauga, Canada, Student, 04/17/2014 02:44
  • 482042) Keri Golden, Rahway , United States, Student, 04/17/2014 02:28
  • 482041) Batoul Abbasi, Dearborn Heights , USA, , 04/17/2014 01:36
  • 482040) Lara Harp, Dearborn, u.s.a, student, 04/16/2014 22:00
  • 482039) Raul Companioni, Miami, US, Car Salesman, 04/16/2014 21:00
  • 482038) Carlos Jimenez, Hialeah, United States, Car Dealer Owner, 04/16/2014 20:59
  • 482037) Frank Lima, Miami, USA, Truck Sales, 04/16/2014 20:58
  • 482036) Raul Dube, Pompano Beach, us, Aviation, 04/16/2014 20:57
  • 482035) Jose Boveda, Hialeah, us, Car Salesman, 04/16/2014 20:56
  • 482034) Jose pepe Herrera, Miami, US, Warehouse Manager, 04/16/2014 20:55
  • 482033) Ayah Awadallah, Dearborn, United States, , 04/16/2014 17:00
  • 482032) Neda Boss, Dearborn, U.S, , 04/16/2014 16:56
  • 482031) Privacy Protection, 04/16/2014 16:55
  • 482030) barp carlo alberto, Torino, Italia, employee, 04/16/2014 15:11
  • 482029) Lucio Sottile, Barcellona Pozzo di Gotto, Italia, Agente Telecom, 04/16/2014 12:37
  • 482028) Gianluca Casula, Riola Sardo (OR), Italia, , 04/16/2014 11:49
  • 482027) umberto addari, atene, grecia, architetto, 04/16/2014 09:38
  • 482026) Privacy Protection, 04/16/2014 08:52
  • 482025) Christina Oikonomopoulou, Athens, Greece, Health Services Manager, 04/16/2014 06:59
  • 482024) Jeanelle Marais, Klerksdorp, South Africa, , 04/16/2014 04:17
  • 482023) Sara Di Biagio, Torino, Italy, Studentessa, 04/15/2014 22:21
  • 482022) Sagar Meetra, Montreal, Canada, Student, 04/15/2014 22:14
  • 482021) Francisco Rangel, Taft, US, Material Yard Manager, 04/15/2014 22:02
  • 482020) Manuel Horta, Miami, US, Retired, 04/15/2014 21:19
  • 482019) Juan Carlos Matos, Miami, US, Machine Shop, 04/15/2014 21:18
  • 482018) Felix Rodriguez, Miami, USA, Sales, 04/15/2014 21:17
  • 482017) Armando Espinosa, Miami, USA, , 04/15/2014 21:16
  • 482016) Jose Diaz, Hialeah, us, Retired, 04/15/2014 21:15
  • 482015) Miguelina Justo, Santo Domingo, Dominican Republic, Psychologist, 04/15/2014 15:15
  • 482014) Zivan Trifunovic, Klerksdorp, South Africa, Student, 04/15/2014 08:05
  • 482013) Zivan Trifunovic, Klerksdorp, South Africa, Student, 04/15/2014 08:03
  • 482012) Ioannis Papassotiriou, Athens, Greece, Director Department of Clinical Biochemistry, Aghia Sophia Children's Hospital, 04/15/2014 07:58
  • 482011) MARIA GIANNAKI, ATHENS, GREECE, MD, 04/15/2014 07:21
  • 482010) Maria Kaklea, Athens, Greece, Biologist, 04/15/2014 07:20
  • 482009) Rosy Chumacero, Juárez, México, Teacher, 04/15/2014 03:43
  • 482008) DyNesha Banks , Katy, USA, , 04/15/2014 00:36
  • 482007) Leticia Luz, Providence, USA, Student, 04/14/2014 20:33
  • 482006) Privacy Protection, 04/14/2014 20:28
  • 482005) Marilda Luz, Providence, USA, Manager , 04/14/2014 20:25
  • 482004) Heike Struwe, Bergisch Gladbach, Germany, , 04/14/2014 16:01
  • 482003) Ashwin Smith, Cape Town, South Africa, , 04/14/2014 15:15

VR FOUNDATION: SPONSOR OF THE DAY

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.