請願書

尊敬的秘書長先生:

感謝您傾聽我們在人權、衛生和教育領域的呼聲。我們患有一種被世人忽視的疾病——白癜風。署名的僅僅是這數儀人群中極少的一部份。我們遍佈世界各地,生活、工作、養家糊口。

我們為各個行業和文化發展努力。我們中即有富人也有窮人。我們代表了被整個社會忽視的這個疾病群體。我們的身影出現在學校、醫院、影視作品、體育場館和教堂中,也有很多人自我隔離默默的充當社會的志願者。

自歷史上記載有白癜風起,它已經毀壞了數以百萬人的生活,而絕大多數都在發展中國家。現在依然沒有看到治愈的曙光。很少有疾病引起白癜風這樣大的恐懼,尤其是在深膚色人群中表現更為明顯。另由於白癜風沒有傳染性也無生命危險,所以我們幾乎不曾得到國家衛生系統的支持。

因此,我恭敬地請求聯合國:

1、儘快對白癜風的衛生教育給予多層次的扶持,

2、將每年的 6月25日定為世界白癜風日。

秘書長先生,請聽我們的呼聲。我們知道,您可以鼓勵會員國更加尊重我們的權利。請給予白癜風這個被忽視的疾病更多的政策支持。這是對數以百萬婦女,男性和兒童人權和個人尊嚴的尊重。

爲了您的健康和自由。

[簽名]

Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 482139 signatures of the target 500000

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Petition Form № 482140








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petition signatures

  • 482139) Konstadina Papadogianni, Athens, Greece, Civil Servant, 04/23/2014 12:04
  • 482138) Paschalis Sideras, Athens, Greece, Immunologist, 04/23/2014 07:18
  • 482137) Eddie mcmorrow, Vancouver, canada, ironworwer, 04/23/2014 04:56
  • 482136) Shlok Walia, Chicago, United States, Financial Analyst, 04/23/2014 01:48
  • 482135) Adam Chung, Greenville, United States, , 04/23/2014 00:47
  • 482134) François DUCROCQ, Halluin, France, , 04/22/2014 23:38
  • 482133) Pepe Herrera, Miami, United States, Motorcraft Representative, 04/22/2014 21:59
  • 482132) Carlos Jimenez, Hialeah, us, , 04/22/2014 21:58
  • 482131) Jose Borges, Miami, United States, Mechanic, 04/22/2014 21:56
  • 482130) Frank Lima, Hialeah, USA, Sales Manager, 04/22/2014 21:56
  • 482129) Raul Companioni, miami, us, , 04/22/2014 21:55
  • 482128) Roberto Rosario, Miami, us, Car Sales, 04/22/2014 21:54
  • 482127) Genevieve Gillis, Birmingham , USA , , 04/22/2014 20:25
  • 482126) Konstantinos Margaritis, Athens, Greece, , 04/22/2014 18:58
  • 482125) Irina Karabultova, Kazan, Russia, PhD, professor of Kazan federal Uni, 04/22/2014 17:54
  • 482124) ΦΡΕΙΔΕΡΙΚΗ ΜΥΡΙΑΛΛΑΚΗ, ΑΘΗΝΑ, ΕΛΛΑΔΑ, , 04/22/2014 16:38
  • 482123) Асель Маркабаева, Алматы, Казахстан, Дерматолог, 04/22/2014 15:53
  • 482122) Yassine Akasbi, Bruxelles, Belgique, élétronicien, 04/22/2014 13:46
  • 482121) Alena Milakh, Chelyabinsk, Russia, Singer, 04/22/2014 13:15
  • 482120) Elena Grigoreva, Моscow, Russia, Finansist, 04/22/2014 12:50
  • 482119) Privacy Protection, 04/22/2014 12:06
  • 482118) Anna Dermitzaki, Athens, Greece, , 04/22/2014 09:56
  • 482117) naubek amonzholov, astana, kazakhstan, ingineer, 04/22/2014 08:50
  • 482116) Privacy Protection, 04/22/2014 06:27
  • 482115) Karina Sukarmin, Depok, Indonesia, College Student, 04/22/2014 05:56
  • 482114) gladys mathelier, saint herblain, France, , 04/21/2014 21:27
  • 482113) Janessa Sanders, Cullowhee, USA, , 04/21/2014 19:40
  • 482112) nancy havarria, killeen, United states, realtor, 04/21/2014 16:29
  • 482111) Marquise Bakema, Rome, Italy, Teacher, 04/21/2014 16:29
  • 482110) Privacy Protection, 04/21/2014 16:27
  • 482109) Privacy Protection, 04/21/2014 16:25
  • 482108) Privacy Protection, 04/21/2014 16:21
  • 482107) Mandy Ronda, Almere, Netherlands, , 04/21/2014 16:07
  • 482106) Natalie Noteboom, Copperas Cove, United States, Hair stylist, 04/21/2014 14:39
  • 482105) Eleni Tsoka Gennata, Athens, Greece, Physician, 04/21/2014 11:29
  • 482104) Privacy Protection, 04/21/2014 10:03
  • 482103) Takis Panagiotopoulos, Athens, Greece, Paediatrician, 04/21/2014 06:19
  • 482102) Isabelita Bodbod, Cagayan de Oro City, Philippines, Teacher, 04/21/2014 02:48
  • 482101) Sam Forrest, Frederick, United states, Student, 04/21/2014 00:53
  • 482100) Megan Diggle, Bolton, United Kingdom, , 04/20/2014 22:04
  • 482099) GERASIMOS KOLAITIS, ATHENS, GREECE, ASSOCIATE PROFESSOR OF CHILD PSYCHIATRY, 04/20/2014 17:33
  • 482098) Sadia Miah, London, United Kingdom , Student, 04/20/2014 08:54
  • 482097) 'Deniji Kosoko-King, London, United Kingdom, , 04/19/2014 21:28
  • 482096) Vassiliki Hantzara, Athens, Greece, Child-psychiatrist, 04/19/2014 18:29
  • 482095) Daryan Alves, Rahway, United states, , 04/19/2014 17:34
  • 482094) Jas Iacob, Tg-Jiu, Romania, Student, 04/19/2014 16:22
  • 482093) wu hai, xi,an, china, government employee, 04/19/2014 16:12
  • 482092) wendy abc, singapore, singapore, , 04/19/2014 16:10
  • 482091) SAI HSEING PHA, Mong Pin, Myanmar, Student, 04/19/2014 15:18
  • 482090) manahar kumar, london, united kingdom, , 04/19/2014 13:29

VR FOUNDATION: SPONSOR OF THE DAY

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.