請願書

尊敬的秘書長先生:

感謝您傾聽我們在人權、衛生和教育領域的呼聲。我們患有一種被世人忽視的疾病——白癜風。署名的僅僅是這數儀人群中極少的一部份。我們遍佈世界各地,生活、工作、養家糊口。

我們為各個行業和文化發展努力。我們中即有富人也有窮人。我們代表了被整個社會忽視的這個疾病群體。我們的身影出現在學校、醫院、影視作品、體育場館和教堂中,也有很多人自我隔離默默的充當社會的志願者。

自歷史上記載有白癜風起,它已經毀壞了數以百萬人的生活,而絕大多數都在發展中國家。現在依然沒有看到治愈的曙光。很少有疾病引起白癜風這樣大的恐懼,尤其是在深膚色人群中表現更為明顯。另由於白癜風沒有傳染性也無生命危險,所以我們幾乎不曾得到國家衛生系統的支持。

因此,我恭敬地請求聯合國:

1、儘快對白癜風的衛生教育給予多層次的扶持,

2、將每年的 6月25日定為世界白癜風日。

秘書長先生,請聽我們的呼聲。我們知道,您可以鼓勵會員國更加尊重我們的權利。請給予白癜風這個被忽視的疾病更多的政策支持。這是對數以百萬婦女,男性和兒童人權和個人尊嚴的尊重。

爲了您的健康和自由。

[簽名]

Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 498787 signatures of the target 500000

Sign with social network

Petition Form № 498788








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petition signatures

  • 498787) DEEPANSHU GURNANI, ALWAR, India, doctor, 08/30/2015 09:10
  • 498786) Andre Joachim Jr, DeKalb, United States, Undergraduate Admissions Counselor, 08/30/2015 00:05
  • 498785) Anastasia Roybal, Colorado Springs, usa, , 08/29/2015 18:11
  • 498784) David Roybal, Colorado Springs, usa, , 08/29/2015 18:07
  • 498783) Janine Roybal, Colorado Springs, USA, , 08/29/2015 18:04
  • 498782) Pavlovic Necudadam, Belgrade, Serbia, Student, 08/29/2015 17:43
  • 498781) Kristina Eckstein, Bucyrus, U.S., Homemaker, 08/29/2015 13:18
  • 498780) Privacy Protection, 08/29/2015 00:35
  • 498779) Privacy Protection, 08/28/2015 23:17
  • 498778) federica baldi, sale, italy, , 08/28/2015 22:14
  • 498777) Privacy Protection, 08/27/2015 23:45
  • 498776) Privacy Protection, 08/27/2015 22:47
  • 498775) Privacy Protection, 08/27/2015 21:19
  • 498774) Éva Szarvas, Békéscsaba, Hungary, Teacher, 08/27/2015 18:11
  • 498773) shuan Stafford, saint paul, usa, , 08/27/2015 12:15
  • 498772) Adrienn Orosz, Gyomro, Hungary, , 08/27/2015 06:24
  • 498771) Linda Maronova, Horne Myto, linda1341@citromail.hu, , 08/26/2015 18:22
  • 498770) Privacy Protection, 08/26/2015 13:02
  • 498769) Valerie Hamilton, Uxbridge, England, Account's Assistant, 08/26/2015 09:59
  • 498768) Privacy Protection, 08/26/2015 08:35
  • 498767) Privacy Protection, 08/25/2015 19:42
  • 498766) Edina Kertész, Budapest, Hungary, teacher, 08/25/2015 18:45
  • 498765) Tamás Platskó, Budapest, Hungary, , 08/25/2015 16:18
  • 498764) Anikó Bándi, Budapest, Hungary, , 08/25/2015 16:17
  • 498763) Karen Wren, Maidstone, United Kingdom, Project Manager , 08/25/2015 16:14
  • 498762) Privacy Protection, 08/25/2015 16:07
  • 498761) Csilla Kulcsar, Dunaharaszti, Hungary, , 08/25/2015 14:16
  • 498760) Pifkóné Táborita Bernadett, Parádsasvár, Hungary, , 08/25/2015 13:57
  • 498759) sasan ameri, bandar abbas, Iran, , 08/25/2015 12:25
  • 498758) Éva Simon, Parád, Hungary, teacher, 08/25/2015 12:20
  • 498757) Gergely Pilisi, Gyomro, Hungary, System Engineer, 08/25/2015 11:23
  • 498756) Denisa Meszaros, Dunajska Streda, Slovakia, , 08/25/2015 06:36
  • 498755) Hamar Sándorné, Taksony, Magyarország, , 08/25/2015 06:18
  • 498754) Celeste Dimichina, Vancouver, USA, administration , 08/25/2015 00:19
  • 498753) MICHAEL LAMPTEY, ACCRA, GHANA, BROADCAST JOURNALIST, 08/24/2015 20:48
  • 498752) Tamasne Csiki, Szekszard, Hungary, , 08/24/2015 18:55
  • 498751) Vass Lajos, Budapest, Magyarország, Geodéta, 08/24/2015 18:28
  • 498750) Lovas Mária, Budapest, Magyarország, , 08/24/2015 18:24
  • 498749) Roberta Vigano, Milan, Italy, , 08/24/2015 15:03
  • 498748) Hajnalka Szeker, Budapest, Hungary, , 08/24/2015 14:53
  • 498747) Lola Skellington, Budapest, Hungary, Student, 08/24/2015 14:47
  • 498746) lacko zsani, komárno, szlovákia, , 08/24/2015 14:37
  • 498745) Krisztina Fejes, Gyomro, Hungary, , 08/24/2015 13:39
  • 498744) Tünde Zsolnai, Budapest, Hungary, Ápoló, 08/24/2015 12:58
  • 498743) Bettina Bedics, Budapest, Hungary, Student, 08/24/2015 12:55
  • 498742) Takács Bálint, Pécs, Hungary, Mentőápoló hallgató, 08/24/2015 12:48
  • 498741) Privacy Protection, 08/24/2015 07:01
  • 498740) ESZTER GALGÁN, TATABÁNYA, HUNGARY, , 08/24/2015 06:15
  • 498739) Victoria Lattimer , Boone , USA, Student , 08/24/2015 02:49
  • 498738) Cindy Barajas, Palmdale, United States, Risk Representative, 08/24/2015 01:55

VR FOUNDATION: SPONSOR OF THE DAY

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.