請願書

尊敬的秘書長先生:

感謝您傾聽我們在人權、衛生和教育領域的呼聲。我們患有一種被世人忽視的疾病——白癜風。署名的僅僅是這數儀人群中極少的一部份。我們遍佈世界各地,生活、工作、養家糊口。

我們為各個行業和文化發展努力。我們中即有富人也有窮人。我們代表了被整個社會忽視的這個疾病群體。我們的身影出現在學校、醫院、影視作品、體育場館和教堂中,也有很多人自我隔離默默的充當社會的志願者。

自歷史上記載有白癜風起,它已經毀壞了數以百萬人的生活,而絕大多數都在發展中國家。現在依然沒有看到治愈的曙光。很少有疾病引起白癜風這樣大的恐懼,尤其是在深膚色人群中表現更為明顯。另由於白癜風沒有傳染性也無生命危險,所以我們幾乎不曾得到國家衛生系統的支持。

因此,我恭敬地請求聯合國:

1、儘快對白癜風的衛生教育給予多層次的扶持,

2、將每年的 6月25日定為世界白癜風日。

秘書長先生,請聽我們的呼聲。我們知道,您可以鼓勵會員國更加尊重我們的權利。請給予白癜風這個被忽視的疾病更多的政策支持。這是對數以百萬婦女,男性和兒童人權和個人尊嚴的尊重。

爲了您的健康和自由。

[簽名]

Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 486015 signatures of the target 500000

Sign with social network

Petition Form № 486016








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petition signatures

  • 486015) MaKayla Henry, Irvine, United States, Student, 10/25/2014 21:09
  • 486014) sebkhaoui begaa, alger, algeria, fonctionnaire, 10/25/2014 13:34
  • 486013) Julia Martin, Paris, France, Student, 10/24/2014 21:03
  • 486012) Annelies Goedbloed, Rijswijk, Netherlands, Freelancer IT, 10/23/2014 20:07
  • 486011) Audrey Grant, Mattapan ma , USA , Mentor , 10/23/2014 17:30
  • 486010) Pez Greaves, London, UK, , 10/23/2014 14:54
  • 486009) Susan Masulonis, Virginia Beach, USA, School Office Associate, 10/23/2014 01:26
  • 486008) Tonya Sweney, indianapolis, usa, , 10/22/2014 23:50
  • 486007) Massimo Bonato, Rho (Milan), Italy, Fund Accountant, 10/22/2014 23:39
  • 486006) Adrian Filip, Baia Mare, Romania, Freelancer, 10/22/2014 18:44
  • 486005) Yusep Jeong, Seoul, South Korea, Sale Rep, 10/22/2014 04:41
  • 486004) Виктория Чмут, Харьков, Украина, Флорист, 10/21/2014 15:50
  • 486003) Privacy Protection, 10/21/2014 14:17
  • 486002) Nino Takidze, Batumi, Georgia, Crew Operator, 10/21/2014 12:11
  • 486001) Privacy Protection, 10/21/2014 10:14
  • 486000) Jessica Keith, Boston, United States, Receptionist, 10/21/2014 03:44
  • 485999) Privacy Protection, 10/20/2014 19:56
  • 485998) маркабаев аубакир, Алматы, Казахстан, пенсионер, 10/20/2014 13:17
  • 485997) Ana Cruz, Miami, Miami Dade, Student, 10/20/2014 03:48
  • 485996) MESKINE AMINA, casablanca, maroc, sans, 10/19/2014 12:04
  • 485995) christine B, paris, france, , 10/18/2014 20:29
  • 485994) Didintle Mpedi, Gaborone, Botswana, Student, 10/18/2014 17:20
  • 485993) Ese Omaruaye, Warri, Nigeria, IT Administrator, 10/18/2014 16:06
  • 485992) Amanda Van Niekerk, Dubai, United Arab Emirates, , 10/18/2014 11:06
  • 485991) Anna Kmieć , Kłodzko , Polska, nurse, 10/18/2014 07:44
  • 485990) Shelley Moister, atlanta, usa, Director Prod Mgmt, 10/18/2014 01:37
  • 485989) Deanna Ellis, Germantown, USA, , 10/18/2014 00:17
  • 485988) Марія Ярич, Львівська обл, Україна, Вчитель, 10/17/2014 21:13
  • 485987) vanessa taylor, wolverhampton, uk, , 10/17/2014 20:01
  • 485986) Agnes Ressinka, Budapest, Hungary, , 10/17/2014 17:22
  • 485985) ANA VEGA, SAN JUAN, PUERTO RICO, , 10/17/2014 04:30
  • 485984) Denise Smith, PR, Arecibo, , 10/16/2014 22:07
  • 485983) Dana Coleman, ATLANTA, United States, , 10/16/2014 19:25
  • 485982) Dovhani Makhunamisha, Johannesburg, South Africa, Accountant, 10/16/2014 07:08
  • 485981) Maryline Longueville, Saint Cloud, France , Rue de Bearn, 10/15/2014 20:32
  • 485980) Mickael BOUDMER, Channay sur Lathan, FRANCE, , 10/15/2014 18:42
  • 485979) nish singh, Emalahleni, South Africa, , 10/15/2014 07:15
  • 485978) Myriam BOULARAN, ST ORENS 31, FRANCE, , 10/13/2014 17:10
  • 485977) Dwight Cave, Bowie, United States, Self Employed, 10/13/2014 16:12
  • 485976) brittany brent, Bowie, United States, Full time student, 10/13/2014 16:10
  • 485975) Anthony Cusimano, Baton Rouge, United States, Student, 10/13/2014 13:39
  • 485974) seung gun yang, seoul, south korea, , 10/11/2014 15:34
  • 485973) Dr Prakash Verekar, Nashik, India, Acupuncture Practitioner, 10/11/2014 01:29
  • 485972) Privacy Protection, 10/10/2014 14:00
  • 485971) Елена Швадронова, Москва, Россия, Риэлтор, 10/10/2014 10:03
  • 485970) Jinkyun Han, Daegu, South Korea, Vocational Counselor, 10/10/2014 06:08
  • 485969) Lois Steinberg, Winnetka, United States, singer, 10/10/2014 05:46
  • 485968) boyeun jeon, seoul, south korea, , 10/09/2014 09:23
  • 485967) Chantae gant, Racine, us, cna, 10/09/2014 02:02
  • 485966) Nunzia Pandoli, Florence, Italy, business consultant, 10/08/2014 22:00

VR FOUNDATION: SPONSOR OF THE DAY

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.