News

January 10, 2020

WVD Sponsor

A UK-based Life Science Investments has become the first company to confirm it's sponsorship for the World Vitiligo Day 2020 in Serbia.


Founded in 1999 in London by Dr. Christian Diehl, LSI is a pharmaceutical company focused on the areas of dermatology, plastic surgery and aesthetic medicine.


LSI is in the pre-clinical trials for VITILSI, a cream with active ingridients of Coleus forskohlii root and Cassia alata leaves extract. This is the only plant-based formulation in the pipeline with antioxidant, anti-inflammatory and immunomodulatory properties, combined with melanogenesis-inducing properties.


VR Foundation's exclusive analysis Vitiligo Market Insights And Biotech Pipeline Analysis will help you to understand competitive environment for vitiligo therapies, the key biotech companies involved in vitiligo drug development, along with its clinical trial status, pharmacological action, agreements and collaborations, and stock price trajectory.


October 12, 2019

'How the Globe Celebrated World Vitiligo Day in 2019'  report was published in 'Dermatologic Therapy' by Whiley, - a top name in education, with a 200-year heritage of quality publishing. 


Source: Dermatologic Therapy


October 10, 2019

World Vitiligo Day 2020 First Org Meeting

The first World Vitiligo Day 2020 Organizing Committee meeting took place at the Conference center of CEU University of Madrid, Spain on October 10, 2019. The meeting started with a light breakfast at 8.00 am, and proceeded with WVD presentation and discussions. The meeting resolutions are as follows:


1. The 10th annual World Vitiligo Day will be celebrated all over the world next year. The WVD 2020 headquarters move from Vietnam to Serbia. The WVD 2020 campaign President is Dr. Ivana Binic MD, PhD. The leader of the Serbian Vitiligo Support Group Mrs. Slobodanka Mijatovi is in charge of patient communication and coordination.


2. The WVD 2020 theme and logo for the international campaign will be presented by WVD President and approved by the WVD Board by the end of November. Local support groups around the world are free to choose their own themes and logos (within the WVD general guidelines, see WVD website for details), or use the officially approved theme/logo.


3. VRF will provide the WVD headquarters and any other vitiligo support group with a website template, downloadable marketing materials and other support to facilitate and coordinate local WVD activities. Support groups from around the world are invited to send their scheduled activities to a united calendar of events to be published on www.25June.org (currently undergoing a major upgrade) and the World Vitiligo Map; send inquiries to Yan Valle at yan@vrfoundation.org


4. Public institutions and private clinics in Serbia and elsewhere in the world are invited to get involved in the WVD 2020 campaign by offering free consultations to vitiligo patients on the week around June 25th, and/or by providing leaflets and disseminating information about the disease through lectures, presentations and master-classes.


5. WVD 2020 Organising Committee will access the opportunity for a special bus tour, dedicated to the WVD campaign, from Belgrade to Nis, stopping in different towns and cities across Serbia; a site inspection visit will finalise the WVD 2020 bus itineraries. (A similar approach was successfully implemented by WVD past-President Prof. Davinder Parsad in Chandigrh in 2014 with promotional vehicles circulating the city on June 25th.)


6. The book “A No-Nonsense Guide To Vitiligo” and brochure 'Vitiligo Question and Answers” will be reviewed and updated by VRF, then translated to Serbian and Croatian language with the assistance of Professor Ivana Binic, Dr. Maja Kovacevic and Mrs. Slobodanka Mijatovi. The book and brochure will be locally published by sponsors and copies donated to public school and university libraries in Serbia; electronic copies will be freely available to eligible organisations upon request.


7. Promotional T-shirts for WVD 2020 will be donated and mailed to the members of vitiligo support groups all over the world, courtesy of Dr. Medhat Abdel Malek and sponsors. The design should be finalised before the end of December 2019 (Drs. Binic, Abdel Malek and Valle are in charge). Estimated number of T-shirts is 2,000 in three sizes (XL, L, M). Local support groups around the world are encouraged to send their requests for up to 20 T-shirts to Yan Valle at info@vrfoundation.org


8. IMCAS and VRF will collaborate in cross-promoting WVD 2020 to the international medical community, including: a special vitiligo session and workshop at the Annual IMACS Congress of Paris 2020 and other events, with an estimated audience of 70,000 specialists. Promo materials for WVD 2020 will be included in the bags of all congresses delegates at IMCAS conventions.


9. VRF and WVD Board will facilitate meeting of WVD President Prof. Binic with the President of the Republic of Serbia and Ministers of Health and Education for WVD campaign promotion, coordination and facilitation at the national level.


10. Vitiligo community members of every country in the Balkans have expressed their enthusiastic support to the WVD 2020 campaign and will provide their assistance in promoting WVD events in their countries.


11. Drs. Binic, Lotti and Valle will make a site inspection visit to Belgrade and other participating locations in Serbia for accessing facilities and personnel to be involved in WVD 2020 campaign. This inspection will be carried out before end of February 2020.


12. Dermatologic Therapy Journal will provide the overall WVD 2020 campaign coverage for their readers, within journal’s editorial guidelines and under supervision of Dr. Binic.


13. WVD Board will establish an International Sponsorship Committee to facilitate funding of WVD activities in Serbia and elsewhere. It will provide fundraising material templates and share best fundraising practices among vitiligo community.


14. WVD Organising Committee invites leaders of vitiligo support groups and activists from around the world to share their experiences and to submit their short “How To < … >” short videos explaining how to establish a new patient support group, recruit members, organise an event, attract funding, sustain and grow the group.


The meeting was adjourned at 10 am and closed with a group photo.


Source: VR Foundation


September 03, 2019

Lee Thomas TED Talk

Feel like getting inspired, motivated or just looking for a feel-good cry? There's no better way to take a break from your day than with a fresh cup of coffee and a nice TED talk from the most respectable name in vitiligo community.


Watch this incredibly moving TED talk from vitiligo spokesperson, 4x Emmy Award winner, Fox2 TV entertainment guru, and our best friend, Lee Thomas. His extremely personal talk explores the uncomfortable feeling of vulnerability and suggests the way out of a daily stress.


June 25, 2019

World Vitiligo Day 2019 Full Report

World Vitiligo Day has once again swept the globe in a day of celebration and action in support of the estimated 100 million vitiligo sufferers worldwide.


Dermatologists are well aware that vitiligo is an under-investigated, non-communicable, autoimmune skin disease that affects one in every hundred people to some degree; it can strike anyone, at any age. General public largely knows that vitiligo causes the skin to lighten in patches across the face and body and it is incurable, some celebrities have it, – but that typically marks the extent of common wisdom. The burden of vitiligo falls particularly hard on developing countries, due to misdiagnosis, little or no access to effective treatments, and widespread stigmatization and discrimination.


World Vitiligo Day (WVD), which takes place annually on June 25th since 2011, brings this ‘forgotten’ disease into the public eye and is now one of the biggest events of its kind on the planet. And what a day it was for the 2019 event!


WVD is a global initiative, so the campaign international headquarters moves across the globe each year. It was envisioned by a vitiligo patient in Nigeria, built up by a non-profit organization in USA, launched at the university in Italy, then touched down at major hospitals in India, China, the Czech Republic, Brazil and the U.S.


WVD 2019 started with a three-day event in Sugar Land town in Texas, organized by Houston Vitiligo Awareness Movement (Figure 1.) Among the many honored guests were Lee Thomas, 4x Emmy-award nominee from Fox2TV in Detroit, TX; Valarie Molyneaux, leader of VITFriends from Boston, MA and Natalie Ambersley, leader of the UK Vitiligo Society.


The U.S. national theme this year was ‘The Mental and Medical Journey of Living with Vitiligo – The Journey Starts with Me!’, with an impeccable collection of speakers and experts on hand to discuss the current state of affairs and look to the future. Dr. Amit Pandya – of UT Southwestern Medical Center in Dallas – opened proceedings with a wide-ranging talk, which touched on everything from the importance of early treatment to the dangers of mixing phototherapy with Ayurvedic medicine.


After that, excellent speakers took to the podium with energizing regularity. Dr. John Harris – Head of the Vitiligo Center and Clinic at UMMS, Boston – shared impressive results from Incyte’s Phase II clinical trials for Ruxolitinib cream and his outlook for future drugs. Child health expert Dr. Lisa Schuster delivered incredible advice on dealing with the emotional aspects of vitiligo — including the importance of body posture. The inspiring Dr. Pearl Grimes, from the Vitiligo & Pigmentation Institute of Southern California, discussed post-diagnosis coping strategies. ‘A Children’s House’ author Dr. Alanna Bree talked on the emotional and spiritual wellbeing of children with vitiligo, and helped parents and kids at the adjacent conference room.


On the buzzing sidelines, Dr. Kettil Cedercreutz raised concerns about the cost-benefit balance for vitiligo patients, while revealing details of a different treatment approach involving DNA-based therapy with HSP70i. Dozens of tables at the entrance hall were packed with all kinds of products and art from incredible vitiligo talents across the range.


Next week in Hanoi, Vietnam – headquarters for global WVD 2019 – the theme was ‘The Quality of Life of Vitiligo Patients’, which aimed to promote understanding and help vitiligo patients avoid discrimination and become more optimistic in life. Dr. Nguyen Van Thuong, Director of Vietnam National Hospital of Dermatology and Venereology (NHDV) is an honorary President of WVD 2019. He opened proceedings with an impassioned speech that highlighted the golden opportunity for doctors to absorb vitiligo updates, and for patients to share their life and aspirations with society. A host of stellar speakers followed, starting with Dr. Torello Lotti, of G. Marconi University in Rome (whose vigor and determination were instrumental in the launching of World Vitiligo Day) who presented on ‘Herbal Treatment of Vitiligo’.


An equally impressive cast list followed: Dr. Le Huu Doanh, NHDV, on ‘The Situation of Vitiligo Comes to National Hospital of Dermatology and Venereology’; Dr. Nawaf B.S.N. Al-Mutairi, University of Kuwait, on ‘Life Quality of Vitiligo Patients’; Dr. Michael Tirant, Psoriasis, Eczema and Vitiligo Clinic, on ‘Virus, Superantigens and Vitiligo’; Dr. Nguyen Trong Hao, Ho Chi Minh City Hospital of Dermatology and Venereology, on ‘Melasma According to View of Photoaging’; and Dr. Davinder Parsad, PGIMER, on ‘A Journey: Tissue Grafts to Cellular Grafts’, and Yan Valle, CEO of Vitiligo Research Foundation, on ‘Social and Economic Impact of Vitiligo’.


But, of course, WVD is a global occasion, so innumerable other events were taking place across the world, both on- and off-line. Here are some of the other highlights:

• In Melbourne, Australia, the Vitiligo Association of Australia hosted a gathering where its newly appointed secretary Nada Karadzic highlighted the need to celebrate WVD in a spirit of inclusiveness and acceptance. Dr. Adrian Mar lectured on recent advances and cautioned the audience about trade-offs and uncertain benefits of ‘natural products’ for vitiligo.

• In São Paulo, Brazil, a team led by Dr. Paulo Cunha (President of WVD 2017) used the day to educate people on the non-contagious nature of vitiligo and highlight the need for investment to improve research. Advertising and word-of-mouth caused large numbers of patients to gather at the newly established phototherapy center.

• In China, the Vitiligo Research Centre of the Chinese Society of Dermatology, directed by Dr. Xinghua Gao (President of WVD 2015) organized a multi-faceted national event, which saw hundreds of dermatologists spread public awareness of vitiligo through lectures, TV coverage, free consultations and digital chat.

• In Holguin, Dr. Jorge Luis Pérez, President and Founder of Cuban Vitiligo Support and Research Group organized WVD event for patients that generated a mass media coverage, – a rare occasion for a dermatological condition that very few on the Freedom Island have heard about before.

• In Zagreb, Croatia, a ‘Living With Vitiligo’ event took place at the Clinical Hospital Centre’s Department of Dermatology and Venereology. Psychologist Domagoj Mihatovic gave a talk, followed by round table discussions involving Dr. Andrija Stanimirovic, patients and physicians, and a TV show with Dr. Maja Kovacevic participation the next day.

• In Tehran, Iran, program at the Research & Training in Skin Diseases & Leprosy Centre included an opening lecture from directors Dr. Dowlati and Dr. Firooz, followed by Dr. Seraj on pathogenesis of the disease, Dr. Kashani on medical treatments, while Dr. Mousavi and Dr. Ayatollahi demonstrated surgical therapies.

• In Shymkent, Kazakhastan – a third major hotspot for WVD 2019 activities – Dr. Aliya Kassymkhanova and colleagues from the Regional Dermatovenerological Hospital coordinated a nation-wide, week-long vitiligo awareness campaign, with over eight hundred participants attending series of lectures on vitiligo and other hypopigmented skin conditions, new treatments, quality of life, and more. Live demonstrations of surgical techniques also took place at the hospital, – a regional hub for vitiligo research and care, and a home base for ‘Vitiligo School’ for patients since 2010.

• In Monterei, Mexico, Dr. Jorge Candiani hosted an event at the Monterrey University Hospital, where patients enjoyed a series of talks, and were given small gifts, before enjoying a drink with the assembled medics! The event was covered by TV and newspapers. Dr. Karen Ferez also held artistic WVD celebrations in Mexico City.

• In the UK, Dr. Andrew Thompson from the University of Sheffield gave a special WVD lecture: ‘Addressing the Psychological Needs of People Living with Skin Conditions: What Works, What is Available and What we Need to Do’.

• In Lybia, Dr. Gamal Duweb – President of the Libyan Society of Dermatology – and his brave staff still marked World Vitiligo Day, even though the country is locked in civil war.

• In Russia, Dr. Konstantin Lomonosov hosted celebrations at Moscow’s 1st Medical University, with free consultations for dermatology department patients, and lectures to residents. Dr. Lomonosov also announced that a specialized vitiligo clinic – the first of its kind in the sprawling mega-city – would open by the end of the year.

• In Myanmar, Dr. Vernette Sann coordinated and oversaw multiple WVD events in three separate hospitals – ‘All About Vitiligo’, ‘Is Surgery the Answer to Vitiligo Treatment?’ and ‘Can Vitiligo be Cured?’, which were all covered by national TV and print media. Their next year’s theme is ‘Vitiligo – A Holistic Approach’.

• In Sri Lanka, Dr. Ajith Prasanna Kannangara organized the country’s first ever WVD celebrations that reached out to every corner of this beautiful island. The event included social media activity, a major TV show, and an education program for patients and medical staff at Base Hospital, Balapitiya. Lectures were also given by Dr. Hettiarachchi, a senior medical officer and a psychologist Dr. Wickrama.

• In South Africa, Dr. Noufal Raboobee oversaw events in hospitals in both Durban and Cape Town, which featured talks by Prof. Aboobaker, Dr. Khoza, Dr. Sacoor and Dr. Sibisi to help patients better understand their own relationship with vitiligo. The events were covered by radio channels, while a 1-hour national TV show on vitiligo screened the same day. The ambitions for 2020 are set to involve other provinces in WVD celebrations.


Once again, World Vitiligo Day campaign has highlighted the strength, ingenuity and determination of patients, medics, support workers, volunteers and everyone else connected with the wonderful global vitiligo community. It was truly a day to remember.


In 2020, WVD headquarters will continue its international journey and come to the capital city of Serbia, under the honorary presidency of Prof. Ivana Binić, MD



June 25, 2019

World Vitiligo Day 2018: global success!

Happy World Vitiligo Day! It's time to let our freak flags fly and live the emotions that we feel in the depths of our being.


Before I share with you my excitement about the World Vitiligo Day 2018 conference we just wrapped in Boston, I must tell you about our meeting at the United Nations the day before. We're slowly navigating the complex web of spoken and unspoken rules of the UN's Economic and Social Council to get to our ultimate goal: an official recognition of the World Vitiligo Day by the UN General Assembly. There are no official guidelines on 'How To Make A World <something> Day' at the UN, so we're building up our case and collaborations now.


Now back to the conference, held at University of Massachussets just outside of Boston. The theme this year was 'Children, Research, and Hope for the Future.' Dr. John Harris and Valarie Molyneaux deserve special recognition, yet we should also thank Tiffany Grant, Barbara Hamilton, Erika Page, Patricia Roissy, Alicia Roufs, April Sawyer, Lee Thomas, among many awesome volunteers who contributed to this outstanding event.


Passionate speakers were equally impressive with presentations on Parenting Child With Vitiligo by Dr. Lisa Schuster, Enigmas of Childhood Vitiligo by Dr. Pearl Grimes, a collective Research Update moderated by John Harris, and unlocking the Dead Sea secrets by Dr. Aliya Kassumkhanova.


International guests, like Jean Marie Meraunt from Paris, France shared his perspective on vitiligo, Nunu Galot from the London, UK exposed prejudice towards vitiligo, while Marilynn Burch-Harvey came from Edmonton, Canada to learn how to start a support group.


If you missed the live broadcast, watch the recording on YouTube (Day 1, Day 2) My hat off to the IT and support team at UMass for their seamless integration of all high tech tools you can think of.


We tend to think less of our abilities and we discount our success. No more! We did it for seven years in a row, against all odds. The World Vitiligo Day is our day. Let's celebrate!



June 25, 2019

World Vitiligo Day 2019 in Hanoi, Vietnam

Forgive me for writing to you with such haste. Recognize that I am writing stream-of-consciousness onboard the plane, heading from Hanoi, Vietnam to the third World Vitiligo Day conference, — this time in Shymkent, Kazakhstan. I am emotionally overwhelmed and trying to assimilate the most stimulating and overpowering of annual event for our community.


In retrospect, speakers in Houston discussed the current state of affairs and looked out over the horizon. Both kinds were equally important, and their presentations were certainly worth the price of registration fee. All speakers didn’t just fly in and out, they stayed for all three days, — both to meet other speakers and meet 300+ attendees. It was a wonderful experience!


WVD conference in Hanoi had a family-like atmosphere, where everyone comes with their own gifts. Dr. Nguyen Van Thuong introduced speakers and delegates, and dashed through the numerous WVD activities at the National Hospital of Dermatology and Venereology, and around the country. He set the overall tone for the day in a language I couldn’t understand, but bursts of positive emotions were going through the roof.


Davinder Parsad from Chandigarh, India is one the world’s leading experts on vitiligo surgery and other treatments. His excellent presentation “A journey: tissue graft to cellular graft” included several educational videos. Later, Prof. Parsad performed a live demo of a transplantation technique, calmly explaining intricate details of the procedure to Vietnamese colleagues and dermatology residents.


Michael Tirant’s deck of slides on “Viruses, Superantigens and Vitiligo” made me think to re-open our own investigation into the matter. Apparently, Epstein-Barra virus isn’t that insipid and may cause an adverse chain reaction that result in a vitiligo patch. Prof. Tirant's second presentation focused on lifestyle and dietary choices for vitiligo patients. Every slide was loaded with multiple bullet points to convince the non-believers.


Torello Lotti needs no introduction. His invaluable contributions to the campaign are innumerable. Without him, we might not even have the World Vitiligo Day at all! A charismatic speaker, Prof. Lotti is surely enjoying large audiences that are keen to learn about vitiligo from the top expert in the field.


If Michael is more like a shotgun, Torello is a high-velocity machine gun with 100+ slides in his deck. His lecture on “Herbal Treatment of Vitiligo” resonates with the local traditions that aim to balance mind and body with the nature itself. The next generation of herbal treatments — either cosmeceuticals or nutraceuticals — might provide the necessary relief to the patients that choose traditional medicine over pharmaceutical products.


I could go on and on about the other speakers. Prof. Nawaf B.S.N. Al-Mutairi discussed the situation of vitiligo in the country and patient’s quality of life, while Prof. Nguyen Trong Hao shed light on photoaging-induced melasma.


Needless to say, June 25th marked another record with nearly 800 patient attendees in two days. You have to see this incredible dance show performed by vitiligans from all over the country. Congratulations to the dozens of winners of the donation prize draw. 


Now, I know you wish you could’ve been there. I wish you had been there too. Your personal presence would have made it even better. Why not make plans for the next year now?


In 2020, the World Vitiligo Day headquarters will continue its international journey and move from Hanoi to Belgrade – the outspoken, proud and audacious capital city of Serbia.


Lastly, a world of thanks to Vitilinex, the WVD International conference sponsor. This Australia-based company developed a range of herbal products for vitiligo and other skin conditions. Research indicates that Vitilinex® herbal bio-active ingredients in combination with nbUVB may be an effective treatment option for 87% vitiligo patients of Asian origin that participated in a study.


Yan Valle

CEO VR Foundation


Source: VR Foundation


June 23, 2019

World Vitiligo Day conference 2019 - Day 2

Greetings from Sugar Land, TX, where we just wrapped Day 2 of the World Vitiligo Day 2019 Conference.


After eight WVD experiences, I thought I had seen it all, and it couldn’t get any better — especially after the one in Boston last year. Nope, far from it. Day 2 has been a whirlwind of amazing speakers, informative presentations, and fascinating sideline conversations. So this post is a lengthy one!


The first tune of the day, perhaps, was a little overwhelming for me. A welcome presentation by the Global Vitiligo Foundation — a big sponsor and supporter of the World Vitiligo Day conference in the US — delicately avoided the history of the World Vitiligo Day itself. Weird, I know... This and other little things that were left unsaid reveal a fundamental disconnect in how different vitiligo leaders see ‘unity’ in the community. However, an emotional video featuring many familiar faces with personal notes was truly touching.


Dr. Amit Pandya opened the day with an overview of vitiligo therapies. His wealth of experience drives thousands of vitiligo patients of all skin types to UT SouthWestern in Dallas. He stressed the importance of an early treatment — within two years from the onset — but suggested a more aggressive approach if a confetti-like depigmentation pattern is observed (as seen in up to 46% of all patients). Patience is a true virtue in a therapy that rarely achieves 100% success rate and relapses may happen in up 40% cases within one year. Just don’t mix phototherapy with Ayurvedic medicine — or it might cause a second-degree burn — and get a portable UVB for a supervised home use.


Dr. John Harris is one of the world’s leading specialists on vitiligo, and a head of Vitiligo Center and Clinic at University of Massachusetts in Boston. John shared impressive results from Incyte’s clinical trials for Ruxolitinib cream — more in the previous newsletter — and continued with other emerging treatments. Somewhere along the lines of academic research John found an opportunity to launch a new biotech company, Villaris Therapeutics, that takes similar approach to Amgen’s but with different IL15 target in sight. I wish I could ask John more questions, but there’s always a lineup of attendees waiting to catch on the rare opportunity to chat with him. I hope to follow-up with John on our sideline conversation about segmental albinism vs segmental vitiligo.


Dr. Lisa Schuster took the stage after lunch — a challenge at most conferences because people get sleepy. She made everyone sit bolt upright, though. Her practical advice on how to deal with emotional aspects of vitiligo — including body posture! — is truly invaluable. The next speaker was Dr. Pearl Grimes, without whom no vitiligo conference would be representative enough, to discuss coping with the condition after the dreadful diagnosis. Dr. Alanna Bree focused her talk on “Emotional and Spiritual Wellbeing of Children with Vitiligo” and helped parents with kids at the adjacent conference room.


At the back of the room, Kettil Cedercreutz, CEO and founder of Temprian Therapeutics, shared my concern regarding the cost-benefit balance for vitiligo patients. There simply aren’t that many people in the U.S. actively looking for new treatments — while competition is heating up. Kettil is confident about perspectives of DNA-based therapy from Temprian, representing a different approach to treatment. We spoke about endpoints they could monitor for HSP70i, the ideal patient, and about biotech investor sentiment in general.


Lee Thomas and Erika Page steered the conference all day long, on and off-stage, to take attendees to the whole new level of friendship and excitement. Shazaad Games, one of the attendees, draw my attention to the FOX 26 TV coverage of the World Vitiligo Day during the morning show.


Last but not the least I would like to thank Incyte for providing vital sponsorship to this conference. Why have so many pharmaceutical companies been off about vitiligo for so long? In part that’s because they were looking for patterns to support their preconceptions, — rather than looking for exceptions.


But vitiligo has always been sui generis — largely an exception among dermatological diseases; often perceived as a cosmetic disorder; ignored by insurance companies; misunderstood by the public. Incyte has turned that page first, to start with a fresh perspective on the community, years before a drug (if all goes well in Phase III trials) would reach patients. David Dubinsky, Head of Patient Advocacy, and his team really impressed many attendees with a low-key, attentive attitude to what everyone has to say.


And with that I will hit the Send button. I have a flight to catch to get to the global World Vitiligo Day headquarters in Hanoi, Vietnam. I will get back to you in a couple of days with more news about the most important week of the year for vitiligo community.


Until then,


Yan Valle

CEO VR Foundation


Source: VR Foundation


June 22, 2019

World Vitiligo Day conference 2019 - Day 1

I’m writing this  to share with you a few highlights from the World Vitiligo Day Conference just outside of Houston, Texas. 


Special thanks to Diane Tribitt and her great HVAM team for making it all possible. The conference began Friday evening, when I had the pleasure to mix & mingle with key people in vitiligo community and research.


Lee Thomas — who needs no introduction — kicked off the annual celebrations with an emotional speech; check out photos and videos on WVD Facebook now. Emoetry Speaks took over the stage with a poetic expression of vitiligo lifestyle. A fashion and dance show rocked the ballroom until late evening.


In between the bursts of energy and laugher I had a chance to chat with Laura Bosworth, president of TeVido BioDevices. Laura is dynamic former Fortune 50 executive, so she is most definitely worth listening to. TeVido is prepping for a product launch in a few weeks, and we agreed I will report separately on this.


The main WVD 2019 theme in the U.S. is ‘Vitiligo Journey — Healing Starts With Me!’ and this conference may have a significant consequence for everyone. I expect a great deal of insights that will steer the vitiligo therapy development into a certain direction.


I can’t possibly explain in an email everything that’s been discussed on the WVD stage so far, but one attendee said to me, “I’ve already learned more about vitiligo in two hours than I have all year.” And we’re just getting started.


My apologies for not being able to do a live broadcast from the conference because of the poor internet connection there. If you want to see videos, photos, and presentations of this amazing conference, check out our website in a couple of days.


I’ll be back with more later today, including notes on treatments from Dr. Amit Pandya and research update from Dr. John Harris.


Until then,


Yan Valle

CEO VR Foundation


Source: VR Foundation


June 20, 2019

World Vitiligo Day 2019 kicks-off in Sugar Land

June 21st might be one of 2019 most important dates for all of us this year. That’s because the conference themed 'The Mental and Medical Journey of Living with Vitiligo - The Journey Starts with ME!' in Houston (TX) kicks off the World Vitiligo Day celebrations. So much information packed into just three days.


A panel of well-known speakers will cover various subjects, from new research discoveries through treatments to coping with vitiligo effects (program, PDF). But you don’t have to attend all the presentations in three days. The main events will take place on June 22. Catching just half a day of your favorite speakers live is an exhilarating experience. You can’t replicate it on video, it isn’t the same.

Personally, I can't wait to hear what Dr. John Harris has to say about excellent results of Phase II clinical trials for topical ruxolitinib, a selective JAK inhibitor. If all goes well in the Phase III trails scheduled for late 2019, this compound could be the first FDA-approved medical treatment to reverse vitiligo. For plain language details check announcement from Incyte or download a scientific presentation from UMass, — if you aren't easily scared by graphs and formulas.


The whole concept of synergistic therapies for vitiligo has been around for quite a while — like bFGF peptide lotion currently marketed in India but patented worldwide. It's therapeutic effects are usually hit or miss, in my practical observation. But new approaches to disrupting the signaling pathways and other anti-autoimmune therapies under development seem to be distinctly different, or else we'll be witnessing a messy patent battle.


However, if you can't physically be present at the conference — like most readers — I hope to transmit this collective excitement and wisdom somehow through the live stream either on the official WVD Facebook page or our Instagram. So if you’re at all interested vitiligo matters, don’t deprive yourself of the fun and save June 22nd for your virtual attendance.


Yan Valle

CEO VR Foundation


Source: VR Foundation


June 01, 2019

Color Me Confident campaign offers free camouflage for kids

In conjunction with Vitiligo Awareness Month, Zanderm launched their 'Color Me Confident” campaign. In the United States, Zanderm is offering a free precision applicator ($25 value) to children with vitiligo. This will give any child with vitiligo the opportunity to experience a great new way to hide white spots on the skin, as needed.


Vitiligo camouflage maker Zanderm was launched in 2015 on the World Vitiligo Day. Over the years, the company has perfected a unique formula that, unlike makeup, will not easily smudge or wear off. Zanderm infused this formula into applicators that can put color exactly where you want it. The wide range of shades helps camouflage virtually any type of skin and vitiligo lesions with confidence.


Join this campaign and receive a free precision applicator for your child. Simply fill out the application form which you will find on Zanderm’s website. A cosmetic specialist will walk you through the process of finding the most appropriate shade for your child. This free offer will be available for a limited time.


Source: Zanderm


June 01, 2019

Letter to Editor on WVD

Dear Editor,


This letter seeks to update medical news editors, as well as clinicians, health ministries, insurance companies, philanthropic institutions, patients and their caretakers on vitiligo, a neglected skin disease, and the World Vitiligo Day campaign.


What Is World Vitiligo Day?

World Vitiligo Day (WVD) has been celebrated every June 25th since 2011. WVD’s original purpose was to bring this ‘forgotten’ disease into the public eye, by raising awareness, portraying its true nature, and debunking common vitiligo myths. And, over the years, its purpose has broadened to recognize the hurt caused to millions by the bullying, social neglect, psychological trauma and disability that affects those with vitiligo – who are also known as ‘vitiligans’.


WVD is a global enterprise, so the campaign headquarters (HQ) moves across the globe each year. It was envisioned in Nigeria, built up in Italy, then touched down in India, China, the Czech Republic, Brazil, and – last year – the US.


The role of VR Foundation is to coordinate the global effort, while national and local vitiligo support groups organize walks, picnics, parades, and other events. Also, clinics and volunteer doctors offer free skin screening programs, education and consultations to the public.


For 2019, WVD HQ is in beautiful Hanoi, Vietnam, under the presidency of Prof. Nguyen Van Thuong. The international theme of this year is 'The Quality of Life of a Vitiligo Patient.'


Source: Dermatologic Therapy


May 30, 2019

World Vitiligo Day 2019 - VIETNAM

The World Vitiligo Day is observed annually on June 25 since 2011. The campaign was born from the determination of non-profit organizations VR Foundation (USA) and VITSAF (Nigeria), and their supporters across the world, to bring this ‘forgotten’ disease into the public eye, and to shine a light on challenges faced by those suffering from vitiligo.


With each passing year the World Vitiligo Day grows bigger and bolder. And with it, recognition of vitiligo grows, particularly since Winnie Harlow, supermodel and vitiligan, walked the Victoria’s Secret Fashion show – one of the hottest fashion tickets on the planet – last fall. What’s more, six U.S. State governors and numerous city mayors have now declared June ‘Vitiligo Awareness Month.’


Why World Vitiligo Day is Important


More than 100 million people around the world suffer from vitiligo. The campaign helps disseminate important information that can help ease the pain of those living with vitiligo.

Through events such as runs and walks, campaign brings together vitiligo sufferers along with their friends and family to show demand for specialized treatments. The day is also marked by educational seminars designed to share the latest scientific and medical research.


Through outreach to potential supporters, campaign raises funds for local support groups, medical centers and academic researchers.


What and Where


The international headquarters are set in beautiful Hanoi, Vietnam this year. The Honorary Chairman of the World Vitiligo Day 2019 is Prof. Nguyen Van Thuong, MD. The international theme of this year is 'The Quality of Life of a Vitiligo Patient.' A panel of renowned speakers will cover a whole range of topics in vitiligo: from novel herbal treatments by Prof. Torello Lotti to Viruses and Superantigens by Prof. Michael Tirant, and all the way to surgical therapies by Prof. Davinder Parsad. Prof. Yan Valle will present the history of WVD campaign and discuss socio-economic burden of vitiligo. As a part of celebrations, National Dermatological University Hospital of Hanoi, other hospitals and clinics across the country will host special events for vitiligo patients. A great deal of support comes from Vietnamese Government. Details and Program


US-based members of the vitiligo community are invited to meet in Houston, TX, for a conference organized by Houston Vitiligo Awareness Movement, led by its founder Diane Tribitt. The national theme is 'The Mental and Medical Journey of Living with Vitiligo - The Journey Starts with ME!' The conference sessions will cover various subjects, such as: New Research Discoveries; Treatment of Vitiligo; Coping / After the Diagnosis; Addressing the Physical, Social, Emotional, and Spiritual Wellbeing of Children with Vitiligo, by well-known speakers including Dr. Amit Pandya, Dr. Alanna Bree, Dr. Pearl Grimes, Dr. Lisa Schuster and Dr. John Harris. Details and Program


How to Observe the World Vitiligo Day


  1. Sign petition and share your story here on 25June.org, official Facebook page or organize your own online group. Human stories are the best way to spread awareness and help the public better understand vitiligo.
  2. Take a walk. Check with your local vitiligo support group for runs or walks that take place on or around June 25. If there's no local group or event in your area yet, organize one! Few T-shirts and lots of petition leafleats are on us!
  3. Participate in a conference in Houston (USA) on June 21-23 or in Hanoi (Vietnam) on June 24-25, or tune in for a live broadcast.
  4. Donate $25 to the local support group of your choice or VR Foundation to expand the campaign in 2020!


Support for the event is huge and well over 500 thousand people from across the world have now signed a petition that asks the UN Secretary General to officially designate June 25th as World Vitiligo Day. 


However, there is still much work to be done. Campaign organizers aim to persuade major healthcare providers and Big Pharma to give vitiligo the attention it deserves and develop effective treatments for this disease.


A special Thank You note to our supporters: The World Vitiligo Day 2019 International conference is sponsored by Dr Michaels Vitilinex (for Vitiligo) by Dr Michaels Skin Clinics.


June 30, 2018

World Vitiligo Day 2018 Report And Videos

The 8th celebration of World Vitiligo Day was held at UMass Medical School in Worcester, MA on June 22-24, 2018. 


The conference was hosted by Dr. John Harris, the Director of the Vitiligo Clinic and Research Center at UMass Medical School, and Valarie Molyneaux, founder and President of VITFriends.


From the pre-event planning and build-up to the event itself, the World Vitiligo Day USA conference 2018 was the most successful yet. More than 400 people attended the conference, which included two keynote speakers and more than 20 presenters, five sessions and lab tours over the course of three days. The networking and social events were enjoyable and re-instilled the sense of camaraderie that UMASS is known for.


The theme “Children, Research, and Hope for the Future” not only reflected our commitment to the cause but also the foundation upon which vitiligo community continue to thrive. Our goal was to sound the alarm that: 1) Vitiligo is a skin disease worthy of attention. 2) Funding for research into the cause and cure of vitiligo is sorely needed. 3) Adequate coverage of proven treatments for vitiligo is a right for patients. 4) Federal and local support for patient advocacy is needed.


Watch the live broadcast recording on YouTube: Day 1 (4 hr. 35 min) and Day 2 (2 hr. 56 min).


Many thanks to those who made the a tremendous success!


Source: VR Foundation


January 22, 2018

World Vitiligo Day 2018 Conference

In 2018, the 7th celebration of World Vitiligo Day will be will be held at UMass Medical School in Worcester, MA on June 22nd-24th, 2018, and hosted by Dr. John Harris, the Director of the Vitiligo Clinic and Research Center at UMass Medical School, and Valarie Molyneaux, the President and Founder of the VITFriends support group based in Boston, MA.


The title for the event is “Children, Research, and Hope for the Future”, and will feature a session focused on children with vitiligo together with another session with vitiligo experts talking about their own research to improve the lives of patients with vitiligo. There will be plenty of time for all to socialize and get to know each other.


Details and registration


June 25, 2017

World Vitiligo Day 2017

The campaign headquarters were set up in Sao Paulo, Brazil, under the presidency of Professor Paulo Cunha. He is well known for his unerring support for the vitiligo cause and he does incredible work with underprivileged communities, including with many Amazonian tribes - who have no access to medical care or dermatological services.


Prof. Cunha is truly committed to bringing the best tools and techniques in the treatment of vitiligo and to fellow dermatologists and patients, organizing national master classes on vitiligo in 2013 and 2016, and holding World Vitiligo Day events since it's inception.


In the US, main celebrations were held in Detroit on June 23-25, under the leadership of Lee Thomas, hosted by Southeast Michigan Vitiligo Support Group.


June 25, 2016

World Vitiligo Day 2016

This year's rally and other events were one of the largest and most exciting in history of the World Vitiligo Day. Prof. Jana Hercogova, the Chair of WVD 2016 campaign, held a key media event in beautiful Prague.


Celebrations across the world continued the whole weekend. A series of events were held in Washington DC on June 24-25. This idea came alive after a successful rally at the Massachusetts State House organized by VITFriends from Boston last year. Yet nobody could expect that number of participants would grow exponentially. This year, Valerie Molyneaux led a 300-plus rally, representing an array of activists, nonprofits, and also researchers, healthcare workers, politicians and elected officials. We posted a quick report about World Vitiligo Day 2016 campaign


June 25, 2015

World Vitiligo Day 2015

World Vitiligo Day 2015 campaign headquarters are in Shenyang, China, under the presidency of Prof. Xing-Hua Gao, MD. Thousands of vehement volunteers around the world raise awareness for vitiligo on the streets and in the media, in addition to 30+ major hospitals receiving vitiligo patients and holding education events today. 


This year all events started much earlier, on 13 Feb 2015, when the General Body Meeting of Indian Association of Dermatologists, Venereologists and Leprologists (IADVL), the largest representing society of Indian Dermatologists, has approved the changing of IADVL VITILIGO Day from May 19th to 25th June.


June 25, 2014

World Vitiligo Day 2014

In the last three years, campaign grew from a few volunteers handing out fliers in the streets and a small number of dedicated doctors to 484,687 activists and 50+ clinics offering free skin check-ups in 17 countries. 


We have already set up two new 'world records' with 225 vitiligo patients seen by dermatologists in the morning at the PIGMER hospital, and 800+ doctors attending events in the afternoon. Forty WVD-branded rickshaws paraded the city of Chandigarh in India, the host of World Vitiligo Day 2014, all day long.


June 25, 2013

World Vitiligo Day 2013

This year, the World Vitiligo Day changed it's headquarters from Rome (Italy) to Detroit (USA) and was celebrated in a series of events, from the distribution of leaflets to large gatherings, which have made each World Vitiligo Day a huge success and generated worldwide media interest: Fox TV interview with entertainment guru Lee Thomas, roundtable with Henry Ford Hospital Dermatology Chair Dr. Henry Lim, art-project with Stephanie Corne and so on. We collected 130,929 signatures to date.


June 25, 2012

World Vitiligo Day 2012

An ambitious global event, the second World Vitiligo Day was held on the week of 25 June this year. It also marks the passing date of pop-star Michael Jackson, a long-time vitiligo sufferer. The event started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th.


June 25, 2011

Purple Fun Day 2011

The first Vitiligo Awareness Day or Purple Fun Day - what it was called then - was brought to life by Ogo Maduewesi, Founder and President of Vitiligo Support and Awareness Foundation (VITSAF) at Silverbird Galleria, Victoria Island in Lagos, Nigeria. The online petition was launched on the website Petitions24 on June 18, 2011. First 111 signatures were collected on the first World Vitiligo Day. Early next year, VR Foundation helped to re-name the campaign, developed marketing materials and launched www.25June.org, which became the official site of the World Vitiligo Day campaign, on January 18, 2012.


Events

2020

This year, the World Vitiligo Day headquarters will continue its international journey and move to Belgrade – the outspoken, proud and audacious capital city of SERBIA – under the firm leadership of Prof. Ivana Binić, MD.



World Vitiligo Day USA 2020 conference themed 'Embrace, Empower, Educate' will be held on June 26-28 in Bloomington, Minnesota. Hosted by Minnesota VITFriends, a 180 member-strong support group led by Alicia Roufs since 2014. Details and registration

2019

WVD 2019 started on June 21st with a three-day event in Sugar Land town in Texas, USA organized by Houston Vitiligo Awareness Movement. The U.S. national theme this year was The Mental and Medical Journey of Living with Vitiligo – The Journey Starts with Me!, with an impeccable collection of speakers and experts on hand to discuss the current state of affairs and look to the future.

Next week in Hanoi, VIETNAM – headquarters for global WVD 2019 – the theme was The Quality of Life of Vitiligo Patients, which aimed to promote understanding and help vitiligo patients avoid discrimination and become more optimistic in life.


Watch the live broadcast recording: Part 1 - SciencePart 2 - Live Demo and Part 3 - Social or read the Full Report

2018

The 8th celebration of World Vitiligo Day was held at UMass Medical School in Worcester, MA on June 22-24, 2018. The Children, Research, and Hope for the Future conference was hosted by Dr. John Harris, the Director of theVitiligo Clinic and Research Center at UMass Medical School, and Valarie Molyneaux, founder and President of VITFriends.

More than 400 people attended the conference, which included two keynote speakers and more than 20 presenters, five sessions and lab tours over the course of three days.

Watch the live broadcast recording from Day 1 and Day 2, or read the Full Report.

2017

That year, the campaign headquarters were set up in Sao Paulo, Brazil, under the presidency of Professor Paulo Cunha. He is well known for his unerring support for the vitiligo cause and he does incredible work with underprivileged communities, including with many Amazonian tribes - who have no access to medical care or dermatological services. Prof. Cunha is truly committed to bringing the best tools and techniques in the treatment of vitiligo and to fellow dermatologists and patients, organizing national master classes on vitiligo in 2013 and 2016, and holding World Vitiligo Day events since it's inception.

In the US, the main celebrations were hosted by Southeast Michigan Vitiligo Support Group in Detroit on June 23-25, under the leadership of Lee Thomas, – 4x Emmy Award winner, Fox2 TV entertainment guru and the best known vitiligo spokesperson.

2016

2016's rally and other events were one of the largest and most exciting in history of the World Vitiligo Day. Prof. Jana Hercogova, the Chair of WVD 2016 campaign, held a key media event in beautiful Prague.


Celebrations across the world continued the whole weekend. A series of events were held in Washington DC on June 24-25. This idea came alive after a successful rally at the Massachusetts State House organized by VITFriends from Boston last year. Yet nobody could expect that number of participants would grow exponentially. This year, Valerie Molyneaux led a 300-plus rally, representing an array of activists, nonprofits, and also researchers, healthcare workers, politicians and elected officials.

2015

World Vitiligo Day 2015 campaign headquarters were set in Shenyang, China, under the presidency of Prof. Xing-Hua Gao, MD. Thousands of vehement volunteers around the world raise awareness for vitiligo on the streets and in the media, in addition to 30+ major hospitals receiving vitiligo patients and holding education events today.


But all events started much earlier this year – 13 Feb 2015 – when the General Body Meeting of Indian Association of Dermatologists, Venereologists and Leprologists (IADVL), the largest representing society of Indian Dermatologists, has approved the changing of IADVL VITILIGO Day from May 19th to 25th June.

2014

In the last three years, campaign grew from a few volunteers handing out fliers in the streets and a small number of dedicated doctors to 484,687 activists and 50+ clinics offering free skin check-ups in 17 countries. Forty WVD-branded rickshaws paraded the city of Chandigarh, host of World Vitiligo Day 2014, all day long. Under the honorary presidency of Prof. Davinder Parsad, MD, the WVD campaign set up two new 'world records' with 225 vitiligo patients seen by dermatologists in the morning at the PIGMER hospital, and 800+ doctors attending events in the afternoon.

2013

This year, the World Vitiligo Day changed it's headquarters from Rome (Italy) to Detroit (USA) and was celebrated in a series of events, from the distribution of leaflets to large gatherings, which have made each World Vitiligo Day a huge success and generated worldwide media interest: Fox TV interview with entertainment guru Lee Thomas, roundtable with Henry Ford Hospital Dermatology Chair Dr. Henry Lim, art-project with Stephanie Corne and so on. We collected 130,929 signatures to date.

2012

An ambitious global event, the second World Vitiligo Day was held on the week of 25 June this year. It also marks the passing date of pop-star Michael Jackson, a long-time vitiligo sufferer. The event started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th.

2011

The first Vitiligo Awareness Day or Purple Fun Day – what it was called then – was brought to life by Ogo Maduewesi, Founder and President of Vitiligo Support and Awareness Foundation (VITSAF) at Silverbird Galleria, Victoria Island in Lagos, Nigeria. The online petition was launched on the website Petitions24 on June 18, 2011. First 111 signatures were collected on the first World Vitiligo Day. Early next year, VR Foundation helped to re-name the campaign, developed marketing materials and launched www.25June.org, which became the official site of the World Vitiligo Day campaign, on January 18, 2012.

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About

June 25th is a day of celebration of our lives and our community.


 The first World Vitiligo Day was held in 2011 and has since become an annual, global event. The campaign was born from the determination of non-profit organizations VR Foundation (USA) and VITSAF (Nigeria), and their supporters across the world, to bring this “forgotten” disease into the public eye, and to shine a light on challenges faced by those suffering from vitiligo.


Over the years, its purpose has broadened from raising awareness of vitiligo to include recognition of the bullying, social neglect, psychological trauma and disability of millions of people affected by vitiligo.


We want June 25th to be recognized by the United Nations as World Vitiligo Day. You can help us by signing our petition to the UN Secretary-General  and add your name to the 500,000+ who have already signed.



World Vitiligo Day GoalsSteering CommitteeAbout Vitiligo

Petition

Dear Secretary-General,

Hear us as we speak with one voice about human rights, healthcare and education. We, the undersigned, are just the few of estimated over 100 million people living, working, taking care of children across the world with this neglected disease, vitiligo.

We contribute to every single industry and culture in the world. We are the rich and the poor. We are the face of the entire all neglected disease community. You find us in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.

Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. But few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, we often receive no support whatsoever from our national healthcare systems.

Thus, I support the initiative 25June and respectfully require the United Nations to

1. Urgently pursue multilateral efforts in vitiligo healthcare and education, and to
2. Designate June 25 as the World Vitiligo Day.

Mr. Secretary-General, please hear our voice. We know you can encourage Member States to respect our rights. Please pursue policies supportive of neglected disease collaboration, vitiligo in particular. This is central to the human rights and personal dignity of millions of women, men and children on this Earth.

Yours in health and freedom

PETITION FORM №

We have collected signatures. Now let’s get 1 million signatures!

How to help

We are building a community of people across the globe who share our determination to beat vitiligo. There are many ways you can become a part of this community. Drop us a line and we'll get back to you shortly. 

If you have questions about our work, or suggestions about things we can do better or differently then please contact us – we’d love to hear from you.

Donate Today Become a volunteer

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FAQ

How many signatures do we need to have the World Vitiligo Day recognized by the United Nations or the World Health Organization?

There is no official guide on 'How To Proclaim The World <Something> Day' and thus we don't know for sure what would it take. Some groups have achieved similar goals with many thousands of participants. For example, a dedicated team of International Federation of Psoriasis Associations (IFPA) spent ten years rallying for the World Psoriasis Day and after two unsuccessful attempts, it was finally recognized by the WHO in May 2014. We hope that you are one of over half a million people who have signed petition to the UN Secretary General, asking for June 25th to be officially designated World Vitiligo Day. The more names we have, the stronger we are – so thank you for your support.

Which country do the most petition signatures come from?

That distinction currently belongs to India, followed by the US, China (even though campaign website seems to be unavailable for most people there) and then Indonesia. 

What is your current progress with the officials?

The main sponsor and organizer of campaign, non-profit Vitiligo Research Foundation was recently granted membership at the Economic and Social Council (ECOSOC), the United Nations’ central platform for debate and innovative thinking. This membership allows us to bring the World Vitiligo Day on the UN agenda and hopefully have it approved by the UN General Assembly. In the meantime, we are supporting lobbying activities of other groups in the US, including Vitiligo Bond (Georgia) and VITFriends (Massachusetts).

Is there an official color, image or logo for WVD?

In a word, no! We encourage individual organizations to use whatever works best for them. VITSAF in Nigeria, for example, uses purple, whereas others are using a black and white combination.

Is there a WVD T-shirt?

Yes, thanks to Olumide Omololu who won a competition in 2014 to design an ‘unofficial’ WVD T-shirt. This proved so popular that we distributed nearly 2,000 of the shirts to support groups across the world, but we have now run out of stock. So, if you want to wear WVD T-Shirt, try doing it yourself - just download the design file you like from here and then send or take it to a print on demand T-shirt shop. If it sounds too comlicated, find an online print-shop and send them link to this page - they should be able to take care of the rest.

Do you have anything I can use to help promote World Vitiligo Day?

Yes, we have put together a media toolkit to help you launch local awareness campaigns. Go to Download Center and scroll down to the ‘Media’ section to find the relevant downloads.

What can I do to help?

Signing the petition and telling people about WVD is a great start. More specifically, we are currently asking dermatologists and beauty clinics to offer free skin check-ups for vitiligo and other pigmentation disorders on or around June 25th. Last year, 50+ participating doctors and clinics provided free dermatological consultations to patients. So, if you’re a dermatologist or beautician, or you know somebody who is and can help us, we would love to hear from you. If you already have something planned for World Vitiligo Day then please do let us know. We’ll add your activity to our WVD calendar of events.

Where will be the campaign headquarters in 2019?

WVD Steering Committee have chosen Hanoi, Veitnam, as campaign’s 2019 headquarters, under the presidency of Prof. Nguyen Van Thuong, Chairman of the Department of Dermatology and Venereology of the National Dermatological University Hospital of Hanoi.

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