2019

01.08.2019 | World Vitiligo Day – a grassroots campaign to improve the quality of life of vitiligo patients.

Dear Editor,

 

This letter seeks to update medical news editors, as well as clinicians, health ministries, insurance companies, philanthropic institutions, patients and their caretakers on vitiligo, a neglected skin disease, and the World Vitiligo Day campaign.

 

What Is World Vitiligo Day?

 

World Vitiligo Day (WVD) has been celebrated every June 25th since 2011. WVD’s original purpose was to bring this ‘forgotten’ disease into the public eye, by raising awareness, portraying its true nature, and debunking common vitiligo myths. And, over the years, its purpose has broadened to recognize the hurt caused to millions by the bullying, social neglect, psychological trauma and disability that affects those with vitiligo – who are also known as ‘vitiligans’.

 

WVD is a global enterprise, so the campaign headquarters (HQ) moves across the globe each year. It was envisioned in Nigeria, built up in Italy, then touched down in India, China, the Czech Republic, Brazil, and – last year – the US.

 

The role of VR Foundation is to coordinate the global effort, while national and local vitiligo support groups organize walks, picnics, parades, and other events. Also, clinics and volunteer doctors offer free skin screening programs, education and consultations to the public.

 

For 2019, WVD HQ is in beautiful Hanoi, Vietnam, under the presidency of Prof. Nguyen Van Thuong. The international theme of this year is "The Quality of Life of a Vitiligo Patient."

 

Read more at Dermatologic Therapy. Published on August 1, 2019 

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Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 503091 signatures of the target 500000 (100.62%). Now let’s get 1 million signatures!

VR FOUNDATION

Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.

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